I graduated from UMBC with a B.S. in Information Systems. My passions are martial arts and psychology. I have never thought that one day I would be the caregiver. Before my father had been diagnosed with ALS, I only had a little knowledge about the illness. I had no idea about how brutal it is.
Before my father’s diagnosis, he used to jog for 30 minutes to 60 minutes every day, no matter the weather. As a news broadcaster, my father had very good interviewing skills. He used to be passionate about a lot of things, which included but not limited to writing, reading, and singing. Unfortunately, after his ALS diagnosis, my father has lost interest in a lot of his passions. My mother and I are still trying to inspire him by giving him hope.
I moved in with my parents to help care for my father, help my mum to process the necessary documents, and support the mental health of the family. Even though ALS is brutal, I am still appreciative of the time that me and my family members can spend together right now.
After my father received his diagnosis of ALS, all our relatives and friends were trying to comfort him. During the first several months, all three of us, my father, mother, and I, were pretending to be strong, but ALS really scared us a lot. However, even though sometime my father and mother are frustrated, they still inspired me by keeping up with daily activities and not give up.
The biggest challenge for us has been the search for the effective resources that can assist my father with his daily activities, transportation, and other upcoming issues. However, by connecting with the Brigance Brigade Foundation and other organizations, we have met so many friendly people who we can rely on, which really inspires us in such a difficult time.
A Brigance Brigade Foundation PALS Grant has been meaningful to us because we are under financial crisis at this moment. Once my father was diagnosed, our family applied for funding as my father needs a lot of equipment like a walker and a power wheelchair. Additionally, renovations to our home were needed to allow my father to live in a more comfortable environment and thanks to the Brigance Brigade Foundation, we have been able to do so.